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Sunday, April 14, 2013

Out of Rhythm



 [Note:  the erratic paragraph breaks that follow are accidental, like the beating of an arrhythmic heart.] 

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For the third time this week, Richard awoke in the tight hold of a heart
attack.  His mind seemed to walk in on an obscene crime of murdered
syncopation.  Flip. Skip. Bounce.  Every god damned chest-pounding trick
unthinkable.   War of the hemispheres at 4:00 a.m.  On the left, a Greek
chorus of thoughts that spoke assurance.  On the right, witches singing
death.  A witch hissed a tune to a chorus member:  “You will die!”  “Yes,
but not today,” came a frontal cortex rebuff.  So the palpitations and
barbs continued, a miasma of P waves flooding a QRS complex.  He lay
there following a cardiac jazz session, a man brought to Jesus, swearing
off caffeine, and repeating a mantra:  “I’m just having a panic attack.” 
Two hours later, the tangled electricity exhausted, the sweet rhythms of a
normal heart restored, he closed the door on the witches yet another day.

He had once participated in an improv chorus exercise during an acting
class.  The instructor would point to a chorus member who started a
story, and then point suddenly and randomly to another member, who
was to pick up the story without losing a beat, even in mid-syllable.  One
mangled word, and the whole story collapsed.  The next chorus stepped
forward. 

He decided the story of his heart was being scrambled in mid syllable. 
EKG’s, Echo Cardiograms, Stress treadmill tests, pills and psychotherapy
couldn’t neuter the chorale engrafted Woody Allen.  He began dreaming
of dead relatives.  He had heard that when people die, a deceased family
arrives to ease the transition.   His uncle Elmer, good hearted, and saintly
simple, arrived in a dream after being dead and unremembered for 42
years.  The perfect escort.  Then, a darker pair of arrivals:  his mother
and father in tandem.  Forty years dead and 60 years separated, now
rejoined to take him out as they brought him in.

“Unknown etiology” -- catch phrase for “crazy.”  Insurance coding means
everything.  A heart man doesn’t get paid for tagging the patient as a nut
case.  So, what’s a doctor to do but order a battery of tests when it’s a
witch’s spell he’s after?

He belonged to the Church of Last Resort, with a one-word liturgy:
“Help!” When it came to fear of death, God was the nuclear option.  He
prayed, sometimes stopping mid-syllable, interrupted by a naked
woman, or an unfinished tax return.  Blessed are the pure of heart, for
their minds will be at peace, even in their final hour.

During one such prayer, an inkling amid the rubble, he saw himself
walking into his mother’s hospital room.  She lay there alone in recovery
four decades earlier, weak of heart, a high-risk surgery for gall bladder. 
Deep, too deep in anesthesia, she slept covered like a ghost covered by a
perfectly white sheet. He touched her shoulder to awaken her.  She
opened her eyes, gasped, and went into cardiac arrest.  For a moment he
stood there confused.  “Mother!” he repeated, as if to require an
explanation.  Finally, he ran down the hall to the nurse’s station.  A nurse
called a code blue.  He watched as the nurse cracked several of his
mother’s ribs doing CPR.  A crash cart arrived.  While paddles shocked his
mother into a short reprieve, a middle-aged man walked down the
lifeless wax-coated hallway just outside her door.  “Barber here!  Haircuts
here!” he chanted.   For several nights, other patients complained his
mother kept them awake with her agonized cries.  Then she died. 

In that instant of prayer, with Edvard Munch clarity, he knew he had killed
his mother.  His ill timed rousing had tripped the delicate rhythm of her
heart.  He had aimed a shot of adrenaline that hit her mid-syllable. Now,
the benign tumor of his suppressed guilt had burst to spread its
poison.  An eye for an eye, a heart for a heart.  If we live long
enough, he thought, every vile act will eventually metastasize. 

He decided only a faith healing would get to the heart of the
issue.  The problem was that he had no faith.  He had seen the
T.V. preachers on cable, with a broom of hair hanging on their
shoulders, power pin-stripped suits, and a flair for fancy cuff
links and stylish handkerchiefs. 

The late night T.V. “Man of God,” as he called himself, offered
prayer charged rainbow colored cloths, anointing oil, and “No-
Evil” water.  All this for free if the listener called the number on
the screen.  The items came with instructions.  The Man of God
interviewed users who reported large sums of money dropping
into their beleaguered lives. “Bullshit,” Richard groaned, but
instantly regretted the word.  The “Man of God” was more
pernicious than that.

One morning he found someone’s homemade single typed page
attached by rubber band to his apartment door, announcing:  “A
Warm Heart Leads to Happiness.”  He read that we can be saved
from the sufferings of this world by Reihanohikari, Light of Divine
Power, by offering sincere prayers to Goshugojin-sama, the
Guardian God of Humanity.  The page provided a telephone
number for Reihanohikari. He wrapped his fingers like insect legs
one at a time around the sheet, letting the feel of it crumbling in
his palm release some of his disdain.  Then he tossed it.

He decided he needed to face his fears. For months he avoided
his usual exercise routine, careful of his erratic heart.  The
cardiologist assured him his heart appeared healthy, then looked
at Richard intently for that millisecond needed to convey, “We
both know your nuts.” 

Still, living alone, with no family, and few friends, Richard
thought it wise to put his driver’s license in the pocket of his
running pants, and to take his mobile phone.  About 1 mile into
the run, short of breath, he felt a steel band suddenly tighten
around his chest.  He felt faint, dizzy, and nauseated.  He
stumbled to a stoplight, and leaned on it while hitting the preset
emergency button on his mobile. 

“We’ll keep you for overnight observation, just in case,” the
emergency room physician told him, after explaining that all the
tests were negative for heart attack. 

“That can’t be.  I know what I felt.” 

The ER doctor titled her head slightly with that same “we both
know” look. 

“The cardiac enzyme tests are very accurate, especially the
troponin results,” she told him calmly.  “Just rest now, and we’ll
do a stress treadmill in the morning just to be sure.” 

It felt like a “pat on the head.”  He had a private room.  The nurse
assured him the EKG readings were being continuously
monitored at the nurse’s station.  Later, she came in to ask if he
was OK.  

“Why?”

“Oh, nothing serious.  Just saw a few skipped beats on the
monitor.  Normal actually.”  She offered him a sedative.  He
declined.

Later that night, a hand pressing repeatedly on his shoulder
jolted him awake.  A woman’s voice growing louder, more clear:

  “Richard.  It’s mother, Richard.  I’m here.” 

(c) FXP 2013

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Footnote:  As taken from my first week in a UCLA Intermediate Short Story Online Extension Course: ASSIGNED WRITING CHALLENGE #1:   

“Write the beginning of a story with a self-conscious narrator who is confronted by a mystery of some sort, some event from the past or the present that the narrator feels an urgentneed to understand. (1-5 pp.)”


Monday, April 1, 2013

Saturday, March 30, 2013

BRAIN INJURY: A LIFE-CHANGING GIFT




My arrival at Coastline Community College  was just the first surprise.   The college is a minimalist, modern concrete and steel structure, at once compact, but also open and spacious.  The architecture draws your attention toward an elevated view.  If this were not a community college, it might be a 21st century cathedral.  

But other surprises ahead were also to point to an elevated perspective: a view of human struggle and resilience.  My new friend, Scott, invited me to join him at a conference offered as part of the brain injury program held at Coastline.  Coastline is a small school nestled in a residential area overlooking the ocean in Newport Beach California.  My friend Scott and three other graduates, Bill, Michael, and  John were part of a panel to speak to current students of the program and their family members. 

I arrived early.   I found Scott and two of his co-panelists in a small conference room waiting for their time to participate.  Scott insisted I join his friends as they waited.  We chatted a bit, mostly about attitude.  While each man’s story was different, I noted one dominate outlook:  each viewed his brain injury as a gift.  Oh certainly, a surprise gift, one definitely not packaged in pleasant circumstances, but valued.  I got the feeling each had re-calibrated his world-view:  he was here to help other people.  Each sought to translate his loss into a gain, not only for himself, but for other brain injured persons and their families.  Each had reached a place of optimism and gratitude.  I didn’t hear one complaint during our chat, during their panel discussion, or at the lunch we shared afterwards.  Finally, one of the instructors opened the door, and informed us we needed to make our way to the conference.  The panel was about to begin. 

Another surprise:  each of the panelists spoke easily without notes or prompts.  Each was organized, articulate, positive, inspiring and intelligent.  Each shared useful information with a sincere attitude of wanting to help.  I remembered some of my own lame presentations.   Secretly, I felt something between shame and guilt.  It was time to step up my game. 

Bill, Michael, John and Scott told their stories in turn, and each answered questions.  Somewhere in the presentations I realized these stories were more than stories of brain injury.  They were stories about the human condition:  that we each eventually lose our powers, sometimes suddenly.  We are born into struggle, but we are also endowed with an extraordinary capacity to live heroically. 

To set the stage, none of the four speakers was glum.  Each displayed a wonderful sense of humor, finding a way to laugh at some of their struggles and set-backs.  Of course, it wasn’t always so.  But now, to have a good measure of happiness, was itself a powerful message. 

The first panelist to speak was Bill, about age 45, a former CEO in the media and entertainment industries.  He still had a warm and friendly smile, and yes, just being around him awhile, you felt like you’d gladly give him your company to run.  His very presence communicated acceptance, but also leadership.   He explained that he had suffered an aortic rupture.  Laughing he said, “my plumbing burst.”  In a cascade of decline, he suffered both blood loss to the brain and a stroke, causing permanent loss of brain function.  Typical of Bill, he was instrumental in forming and advancing the program’s alumni association.  The Association seeks to reach out to other “graduates” to help them continue the process of their recovery.  He was now writing a book, and was about half through, describing various coping and prospering strategies for brain injured people.  He shared one example:  Whenever you can, write to your doctor for follow up information.  Under HIPPA, the doctor must document a reply.  It’s a good way to get free follow up care, he told the new students. 

Michael, also in his 40s, spoke next.  He explained that one night he went to his job as a physical therapist, and awoke a week later in an ICU unit, with a six inch laceration to his skull.  “To this day, I do not know what happened,” he said.  Michael, of the four, was the most overtly religious, speaking several times of how God had provided him with a new life, and a new purpose.  His purpose was to use his brain injury recovery as an example to others to inspire them to never give up.  “I am still a very goal oriented,” he declared.  “My injury did not change that.”   He pointed out that giving and receiving support not only addresses the needs of the brain injured person, but makes everyday life better for everyone. 

John, of the four, had not been with us during our early chat, but had arrived at the meeting location just a few moments before it began.  John was a tall, slender, dignified looking man probably in his mid to late 50s.  He had worked as a computer software engineer before his accident.  “I still do some of that,” he noted.  The problem, he said, was that he had lost his ability at logic, a skill “sort of important to my work,” he added, also smiling.   His brain had been irreparably damaged in a 2001 car accident on Laguna Canyon Road in the pre-dawn hours when he crashed his vehicle into a tree.  He had completed the program in 2006.  He shared an unusual fact: “I and my wife have been married now for 30 years.”  He pointed out that brain injury victims generally have a 90% divorce rate.  He had children in college now, he said.  “I spend my time at home as a student loan specialist.  If any of you want some help with that, see me,” he laughed. 

Finally, my friend Scott spoke. Scott is in his late 30s or early 40s.  He uses a cane, but he is trim, and even muscular.  His head is shaven, showing a web of surgical scaring.  His face is lively, with a strong jaw, and high checks.  I first met Scott last year.   I am a writer, and was with my writing group in a local Irvine, California coffee house.  Our writing sessions ended, and as I walked by Scott’s table, he reached out to ask me a question.  He had overheard us talking about our writing, and wondered if I could help him a moment with a blog article.   Thus began our friendship. 

When you see Scott,  you sense that the brain injury did not distort his essential character.  He remains a dynamic and motivated person with a positive outlook.  Yes, brain injury affects personality, but core strengths remain.  When I observe Scott, I sense that the “gift” of his injury brings forth the resolve and compassion that were always there.   As Scott explains: when he was a high powered business consultant, he was too busy to do all the wonderful things he now can do.  He writes, maintaining a blog for brain injured people and family members.  He serves on charities.  He has an active speaking schedule.  He assists other brain injured persons and their families.   

Scott began his talk by explaining that his brain injury was the result of a cancerous tumor removed surgically, followed by aggressive chemotherapy and physical rehabilitation.  He shared his joy at starting the Coastline Program some years ago because he finally met people “who got it.”  They understood his invisible losses of memory, speaking, organizing, planning, writing, dressing, eating, and other daily living skills.   He shared that early in his recovery, he would spend two hours just to write four sentences in an email.  He joked about the “Access” system, the county transportation provided to disabled persons, that picks up and drops off, by pre-scheduling.  All the panelists agreed, it usually takes 4 hours to get anywhere, two hours each direction, “even if the location is next door,” Scott laughed. 

The instructor asked Scott to speak to the problem of how the injury affects motivation.  Even though her question had clinical validity, Scott would have none of it.  “For me, it was never a matter of motivation.  For me, it was exhaustion.”  Scott explained that sometimes the fatigue was insurmountable despite his drive to progress in his recovery.  He laughed, asking if his instructor remembered him falling asleep in class.  “It wasn’t your fault,” he seemed to say.  Scott used the motivation question to focus on attitude.  “For me, it wasn’t: is the glass half empty or half full.  I was just glad to be able to hold the glass until my arm became too tired.” 

The panel’s time was ending, and the speakers had all managed to stay within their time limits, The instructor called the panel to a close.  Scott, Michael, Bill, and I, together with Scott’s mother, and Wendy.  Wendy is Scott's friend from Elementary School, and now serves as his blog article editor.

  The six of us went to the second level of the building, onto a beautiful spacious terrace overlooking a seaside reserve behind the College. Not another soul was around. It was a stunning view, and a warm spring day.  We sat there a while, joking about various things, and enjoying the simple but glorious moments of life together. 

Later, Scott, Wendy, Scott’s mom, Bill and I went out to lunch, to share still more of the goodness we can all bring to one another.  Scott bought lunch, and we parted laughing and hugging.  Now, looking back, I do not feel I was  in the presence of “disabled” persons.  Strangely, I felt I was the “disabled” one.   I felt that I had been too reserved with others, and too often playing it safe.  Maybe, I thought, it was not too late for me, with all my limitations, to lead a heroic life of gratitude and service.


To see a sampling of Scott's writing, go to Scott's Blog: Beyond Injury.

(c) FXP 2013